The additional diagnosis of Lupus SLE and Sjrogrens Syndrome recently provided hope in that additional medication may help with managing my symptoms. Various things have been ongoing since September 2014 which led to this diagnosis. It is likely that I have had these conditions for well over two years as it seems my initial diagnosis of Rheumatoid Arthritis was incorrect and in fact those symptoms were due to the former conditions.
My health had been going into flare for the past few weeks and the week after the half term holidays (during which I couldn't pace effectively) has left me largely bed bound. I had another hospital appointment yesterday and am back on a course of steroids and also starting another medicine which hopefully will manage more of the conditions of my Lupus and my current flare. I'm positive about the potential of this medication. All of these conditions are thought to have been caused by the trauma of my accident and there is still so much to learn about the connections of our central nervous system / brain and physical conditions. These are always complicated by my other orthopaedic health issues but an accurate diagnosis and medication targeted to help that should be a positive addition to my medication regime!!! This new medication will take 12 weeks to take effect during which time the additional slow release steroid injection I was given into my muscles should help ease my symptoms until these new meds can do their work.
I'm so fortunate to have a wonderfully understanding husband and two children to get up for each day. It forces me to focus on pushing through many of my symptoms and I rest when they are at school/ work etc yet stops me from giving in. Pain, mobility of my limbs and clawing of my hands and feet have been a real issue and seeming to increase in severity over recent years and it was the Hubby that pushed me for referrals to more Consultants. I'm glad he did as it has led to these additional diagnosis which I feel positive about and the opportunity to medicate some debilitating symptoms is fantastic.
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Things can always be worse and I know many people have health issues far more challenging than mine but I felt that my health is interwoven into the make up of this blog and is a factor in my everyday and hence, a post documenting these challenges may help someone else suffering feel less isolated. Remember to be kind to yourselves. Take care,
J9 x
